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So overwhelmed  
Started by Elena
28 Jan 2023, 2:40 AM

Hello to everyone having to endure such difficult situations. My Dad just got diagnosed with lung and liver cancer. Doctors told us he's stage 4 already. I live in Toronto and came down to Massachusetts to care for him. He is in hospital and just finished first round of chemo.  I go to the hospital every day at 8am and come home to his empty house at 8pm. The toughest is returning to his house and being alone. I have 2 kids and a spouse that are back in Toronto. They came and visited for a few days which gave my dad some motivation I think. I don't know what to do. I hold his hand and try to be optimistic but we know that things are not good. There are good days and bad. I try my best but it's so hard to see a loved one deteriorating right before your eyes. And the guilt of not seeing each other as much as we should have. I need the strength to keep my sanity. 
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Reply by browncurlyhair
28 Jan 2023, 11:12 PM

Hey Elena --

I feel this... I flew one way from BC to Ontario at the end of November to help my mom with stage four stomach cancer and during the five weeks before she died it was incredibly isolating, overwhelming, crazy-making, sad, stressful, boring -- all of the emotions. I posted in this forum about feeling like I was in a personal hell cuz I didn't want it to end but at the same time I needed it to end, it was very intense, so I get you. This is not easy and no one will really get it until you're in it.

Because I knew that once this was all over I would be devestated that she was gone and I would be crushed if I hadn't appreciated the time I had with her, I was desperate to stay present and relinquish control from the not-knowing. Something that helped me with that was finding a few mantras that I could journal and re-journal. A few that resonated with me were, "I trust in this process. I trust that this journey is unfolding at the pace it should. I trust that I will look back and say, 'Everything happened exactly as it should have.'" It really grounded me and stopped me from swirling.

TBH, I don't know if there's a way to experience this without it being really, really hard, so you may need to just focus on your own basic self-care needs (so at least two good meals a day, a good sleep, one good walk a day, phone calls with friends or your spouse) and just managing the rest as it comes. Know that you will get through it. Know that you BEING there is the best thing for you and your dad, even when it's hard. Know that you will not regret being there for one moment.

And, yes, watching the deterioation is heartbreaking and overwhelming. I was really scared at the beginning, seeing how much weight my mom had lost, seeing how weak/exhausted she was when she walked, watching her experience pain, trying to wrap my head around her decline. I recommend crying when you need to cry. Hopefully you can cry in front of your dad and he can hold you. Let him cry, too. Those were some of the moments that brought me and my mom closer together. Eventually I came around to acceptance that this was what death looked like, and it was going to happen whether or not we liked it, and it was f*cking awful but it happens to all of us. This is what death looks like. Given that your dad is going through chemo it sounds like he'll have more time than my mom, but, yes, you are experiencing the dying process firsthand and it's pretty overwhelming, no two ways about it. <3

I don't know if any of this helps, but know that you're not alone, and you're heroic for leaving your family to be with your dad. It's courageous, selfless, and wonderful that you are there. You are doing a really, really good thing. Take care of yourself and keep posting in here as you need! 
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Reply by Elena
29 Jan 2023, 5:53 PM

 Thank you. it really means a lot that you responded dear. I am really sorry that you had to go through this awful situation with your mom. It feels different getting advice from people who have experienced the same awful diseas. I am preparing myself for the worst. His liver is full of masses. Doctors cant givr him too much chemo because his liver will fail. Such a delicate balance. My dad has been independent for the last 25 years after his divorce. Very strong stubborn man. He cannot accept that he is bound to a bed which he cannot even get up to use the washroom. He has outbursts of rage which affects me too. I have to take care of him reassure him. I feel that I have to take better care of myself too. I'll star taking those walk maybe do a little work out before coming in the hospital. He wants me there all day. I usually go there from 8/9 am until 8/9 pm. It's starting to take a toll on me. But I don't have the heart to tell him that I wan to come in a bit later.
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Reply by Christmas baby
30 Jan 2023, 2:27 AM

While in hospital I was my mother's safety net. She struggles with speaking and I became her interpreter and advocate. I knew what made her comfortable and what didn't. I was spending 12 hrs at the hospital and found it exhausting both physically and emotionally. So I started taking pee breaks and then would walk to the farthest bathroom. Upstairs and downstairs and even a short outside jaunt. Poor mom must have thought I had the runs but those 15 minute breaks every few hours rejuvenated me. I tried to "schedule" them around important hospital routines like meds and Dr rounds so I didn't miss anything. Now that she is home for her final weeks I miss those times where I could take a breath, have a break down and reach out to my support people. But the memories we are making and sharing are precious. 


It's hard to take care of yourself when you are a caregiver taking care of someone else. Do your best. Reach out to others to ease your burden. And let it out. Rant, cry, break down. 


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Reply by Elena
30 Jan 2023, 6:10 PM

Thank you for your reply. It is very hard to tak care of myself to be honest. But I do feel the impact this whole situation is having on my body and mind. I'll try my best to at least put some steps in maybe sign myself up for gym. Thank you again for your response. I really  do want to make up for lost ti and be there for him as much as I can.
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