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Caregiving and Finances 
Started by jachro
08 Dec 2012, 2:55 AM

     I have spent most of my life caring for others. I have worked with special needs children, adults and seniors. I have worked in nursing homes and as a home care provider. I retired from an 18 year career as a paramedic seven years ago due to medical issues that prevented me from performing some of the more physical aspects of the job. I have been working at a non health care related job for the past five years and although I am not financially ready to retire, I have to. My father is 87 and needs me at home full time. He refuses to have outside help come in and refuses to consider a nursing home due to the added financial burden that would cause. I have searched everywhere on the "net" for some kind of longterm financial assistance for a caregiver. As an only child the onus is on me to take on this added responsibility and I do so gladly. But I really can't afford to not work. If any one has any ideas on how or where to find some kind of assistance I would be most appreciative.
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08 Dec 2012, 11:11 PM

Welcome to Virtual Hospice Jachro. 

You ask a very important question. I'm not sure there's an answer, but I do know that various advocacy groups are trying to change the financial burden that family caregivers bear. For example, The Canadian Cancer Action Network (www.ccanceraction.ca) just published a report "Five-year Action Plan to Address the Financial Hardship of Cancer in Canada: A Call for Action". I'm afraid that does little for your situation right now. 

I'm sure you are aware of the caregiver benefits. They are explained here in this article Caregiver benefits. Unfortunately, the benefits are limited.

Pudding is facing similar financial stresses and shares her story in this thread:
Does anyone have further information about financial support available to fulltime family caregivers?
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Reply by NatR
15 Dec 2012, 1:01 AM

Hello Jachro,

I also have worked as a caregiver in LTC and home care.  I also identify with you in that I decided to retire early to take on helping care for a special needs family member.

so far as I know there is no compensation available for family members  helping out at home.
i wish there was, as it is a full time job being a caregiver - for family member, spouse or whomever.

caregiving isn't cheap as you know, but finding the way to do it yourself and be compensated is going to be difficult.  Notice I didn't say impossible.  Sometimes there are exceptions to rules.

i hope that someone will be able to give you some better options than I can.
i wish you the best and admire you for your commitment to your father, and hope that maybe you will be able to find a solution - even if it is not what you and your dad would like.  
If you can persuade him to take a bed in a nearby facility / it means you can visit and support him - and yet still support yourself.  
Best wishes,
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Reply by bardanlacy
18 Oct 2013, 2:32 AM

If you are caring for an elderly loved one at home, you should make them as comfortable and safe as possible. This can reduce stress for you, as well as, your loved-one. I think, Caregiving is not so cheap. Please produce some mroe attachments.

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