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Home care 
Started by Lucky1312
14 Sep 2020, 3:43 PM

Dad spent six weeks in hospital and lost what little mobility he had.  He is 84, completely incontinent and sometimes unable to help with transfers from bed to wheelchair and back.  He has Alzheimer's and is quickly losing his words.  Currently we are using a service that costs almost $10,000 a month, as they are at the house for ten hours a day, seven days a week, with a two hour break.  Where can I find good, strong people to work for less money?
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14 Sep 2020, 9:11 PM

Hi Lucky1312
It sounds like a tough time for everyone. Although nice for your dad to be 'home' - home has changed over the last 2 months for him and you.
I am wondering what part of the country/world you are in - we might be better able to give you some suggestions. 

Is your dad living with you? How are you and others in the family managing?

Glad you found us.
Katherine

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Reply by Lucky1312
14 Sep 2020, 11:49 PM

Hi, Katherine -

We are in Georgetown, Ontario.  Mom and Dad live in my childhood home, a bit rural and about ten minutes away from me.  I have siblings who live farther away and don't visit regularly.  I am there every day for an hour to see what's really going on.  I work full-time (more than full-time, actually, pretty much seven days a week) and this is very stressful for Mom and me, especially the financial aspect.  I feel that if we could get something affordable in place (even six or $7,000 a month), we could relax.  Dad is on the long-term care home lists, but the wait is long.
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Reply by NatR
15 Sep 2020, 12:37 AM

Dear Lucky1312,

my heart goes out to you carrying this heavy load with your dad's deteriorating health.  It's a real concern for you as you are balancing a full life and trying to keep your parents going as well.  As a former Personal Support Worker in Ontario / I could suggest that you see what private psw businesses are local to you?

a friend of mine - a few years back - supported her dad at home for an entire year  but with two other siblings to help cover shifts and psw support during the weekdays -- is there the possibility of services like that? or is that what you presentlt are doing?

the cost is huge and I'm sure it's a relief to you to have things in place ...

unfortunatejy there are such waiting lists at nursing homes / and I get it, no one wants to move into a facility until necessary - and we will all put that date off - even myself.  There's a huge gap between home and assisted living and an even bigger chasm to get into full care nursing home ..

I hope you discover the right answer for your parents  - and with your watchful eye to coordinate the support - I do hope you are able to breathe a bit easier . 

we are here to listen, to support and occasionally we get some good ideas .
you are in a good forum, with caring people

I don't think my words have helped right now - but at least we have started a conversation and I hope along the way it eases your journey ...

sending you a warm hug via this note
please take care of yourself as well.  Caregivers often forget to recharge their batteries
best wishes ...
NatR  
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Reply by eKIM
15 Sep 2020, 1:07 AM

Hello

I am a volunteer at virtualhospice.ca and I live not far from you, actually. I have a contact at Acclaim Health and I sent a request to her for assistance. I will let you know when I hear from her.

In the meantime, I wish you well. You exemplify what everyone should do in a similar situation – give as much love and care to your parents as they did to you when you were little.  It seems so obvious, but sadly it is not as common as it should be.

Y
ou are doing such a wonderful, loving thing for your parents.  I’m thankful to hear your story.  You are an inspiration to all of us.

If you need some moral support, we are here to listen, anytime.

Love, joy, peace and patience. 

- eKim




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Reply by Lucky1312
15 Sep 2020, 2:07 PM

Thanks to all of you so much.  We are using Comfort Keepers right now, and they charge $31 an hour, sadly only $18 of which goes to their employees.  They are an organization with a wonderful manager, but an owner that I dislike.  He has been known to drive around to clients' addresses on the employees' days off to make sure they are not working for the clients privately.  We have a wonderful man who works for us, but I dare not poach him for fear of reprisal from Comfort Keepers, even though we could offer him a better salary.

You know, most cultures live as a family their whole lives.  We are with our parents while they are raising us, but unfortunately when it is time to help them, we are often far away with our own lives.  Canada needs to jump on board and build houses with in-law suites that we can rent out while raising our families, they move our parents in when it's time.  If I could slip next door to help the PSW with Dad's transfers, that would be ideal.  As it is, it may end up that I have to drive the ten minutes there and ten minutes back every time he needs to be moved.  I work at home, but that is still going to add stress.  My ideal would be a team of three or four collaborative workers, all at $20 an hour, who can also get some housework done for Mom.  Right now we have one man and one woman.  She woman has started to talk back to my mom, who is 83, and she can also be a bit rough with my dad, so I think I will have to ask Comfort Keepers to replace her.  If I can replace her without using that agency, I would love that to save some money.  Is there somewhere that PSWs put up job ads that I could look?
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15 Sep 2020, 2:38 PM

Good morning,
eKIM and NatR have (and will) provide excellent resources and listening ears.  I so appreciate their experience and knowledge. Living in MB, despite being in the same country, the processes might be very different. 

Allie, the Clinical Nurse Specialist with CVH sent me a few more pieces of information that may help which I am sending along in case you have not received some of it.   


You could check out this page Home and Community Care (Mississauga Halton area).  It might be worth it to call the LHIN (Local Health Integration Network – new acronym for meJ to see what kind of services they have for families in your situation.  She was wondering too if the level of support your father is receiving might need to be adjusted as his decline sounds quite substantial and it might warrant help or dollars to subsidize what you are already receiving – if you are receiving any funds for homecare.


The Alzheimer  society of Ontario might have some additional thoughts for you as well.


You are playing so many roles, advocate, researcher, support – both emotional and physical and other ways I don’t even know about, administrator, daughter – and I would imagine that last role is the one you would most like to spend time being. I was talking to someone the other day who said self-care sounds so good but really doesn’t happen a lot of the time – no time. So I hope for you today as you drive back and forth even those 10 minutes that music, the scenery or the sight of nature can surprise and give you hope today.


Warmly


Katherine


 


 
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Reply by Lucky1312
15 Sep 2020, 2:44 PM

Thanks so much, Katherine.  The LIHN provides two hours of free care per day, but it is on their schedule.  Often they show up and there is nothing to be done.

Thankfully my parents are all right financially ... for now.  The next step is a meeting with their advisor to give us facts and figures.  I feel like this will ease everyone's minds when we know how long we can keep up this pace.
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Reply by eKIM
15 Sep 2020, 2:48 PM

Hi Lucky

I just got back an email "automatic reply" stating that the person that I took courses from there has retired.  Oh well.  But they are a great organization.  Try talking to someone at Acclaim Health.  They do serve your area.

In the meantime, if you need a good "listening-ear or two", let us know how you are doing.

In the meantime, don't think that your wonderful dedication to your parents goes unnoticed.  You have a full set of supporters here at virtual hospice who admire you and who are cheering you on.

- eKim
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Reply by TrevorL
10 Oct 2020, 4:19 PM

Hello,


Thank you for sharing your experience with caring for your family and the challenges of finding adequate homecare coverage. I echo NATR, Katherine and Ekim’s comments that this is a place of support and care that we are glad you are a part of. If I read what your comment right, I understand that you work at home. I also work from home and can only imagine how challenging it must be to balance this with the stress of arranging and providing care to your father. I am wondering what you have found helpful in managing the stress and the schedule as you work towards a better care arrangement?


Warm Regards,


-Trevor

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