Dear janey49
What a hard time for all of you – it sounds like there is a great divide between what you are hearing and what you are seeing. Is there someone in your mother’s healthcare team you feel you could talk to and get the information that you need?
I am not sure if you saw the thread started by suehb Caring for Dad with Idiopathic Pulmonary Fibrosis. Two other members, Razz and JennJilks have also posted to that thread.
Caring for your mother over the last years must be taking a physical and emotional toll on all of you. You may already be aware of resources in your area, but just in case if you click on Programs and Services you might find it helpful.
Are there people who support you outside your family janey49? What have you found gets you through the day?
Katherine