Hi
Welcome to our community dorms. The diagnosis may not be the same, but others here, like Marstin, NatR, Xenia, Oldbat understand what a diagnosis like this means to your husband, you and your family.
Do you have family and friends who are able to support you as well dorms? I imagine the last 14 months (and probably longer) have been filled with appointments, uncertainties, worries, lows and highs.
I look forward to continuing the conversation.
Katherine