Xenia,

It is discusting how we as the wife/husband doing all the caring, advocating etc for our spouse yet we are not intitled to claim this on our income tax. Maybe it is time for a flood to the media and how the terminally ill and dying are treated in this country, i know i am awaiting the long term health care minister to get back to me, as i e-mailed Kathleen Wynn about the care CCAC gave to my husband or lack thereof. I am giving him till Mar 6th to responed as Ms. Wynn said i would be hearing from them, but if i hear nothing i start typing everything that was so wrong with the service, and will be including how much being a wife and caregiver has effected myself and family, how much money i saved the government by taking care of my husband at home, and can't even claim the caregivers amount, i did my part as a wife, i also did my part as my husbands caregiver, advocate, i had to fight for his rights as a human being. I will let everyone know what happens, i am betting i will have to go to the media!! I don't go away when i am passionate about righting a wrong!!

Love & Hugs

Dar

I just wrote to W5 on CTV..

What's your story?:

On Fri. Dec. 13,2013 my husband and I were told that he had stage 4 lung cancer, my husband was terminally ill. Sunday Dec. 15, 2013 the biopsy was done and confirmed what they had said. On Dec. 18, 2013 I drove my husband to Newmarket Cancer Center where he was tattooed, on Dec. 20th Radiation began. CCAC was contacted to come into our home. During my husbands illness I have had to deal with Nurses who refused to call my husbands Doctor for him and each time my husband ended up in the hospital. I have had to deal with Nurses on call whom when you call they say they are too tied to come out?? Yet this is their job, they get paid for this!! On Dec. 18th 2014 i called for a nurse as my husband was making some odd noises, and seemed confused. The nurse came argued with our daughter, said my husband is making us look like liars, told us that my husband just had a UTI and needed some good bacteria in his system, to give him yogurt, i did just that. However after the nurse left our daughter said Mom that's not right and she called for an ambulance around 7:15ish, at 11:25 Dec 18th 2014 my husband passed away, so much for that UTI!!!! I invite you to take a look at some other stories on the Canadian Virtual Hospice site, i am not alone in the way our country cares for the terminally ill and dying. Do you know how much help our government gives to help families care for their own? Nothing, do you know how much money families save the government by taking care of their own? Thousands, Yet because i am a wife living with my spouse, caring for him, advocating for him, fighting for his very human rights i am not entitled for the caregivers amount on income tax. My husband turned nocturnal during his last few months of life. This country sure is messed up, we have billions of dollars to help other countries, yet nothing for our own. Whatever happened to charity begins at home. Some branches of our trees go way back, helping to establish this great country, i am sure those ancestors are turning in their grave after all they did and sacrificed for Canada only to see now how their offspring are being treated. I am not saying we shouldn't help others, but i truly think its about time the government brings our own first. Things truly need to be fixed here.

I invited them to see some of our stories here!!