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New to this..and not coping well.  
Créé par Jaytay
22 nov. 2020, 17 h 50

Sadly my hubby was diagnosed with cancer a few weeks ago. The pro is not good and chemo may not be an option. Too sick and too far along for treatment. So tired.  How are other people coping?  
 
Réponse de NatR
22 nov. 2020, 21 h 30

dear Jaytay

my heart fell when I read your note - I'm so sorry you have been hit with such dreadful news without warning

the shock is tremendous, do you have anyone near you to help with caregiving, companionship? You and your husband are both dealing with this sudden news and it's certainly the first hurdle to get over.

it sounds to me like your husband will need the most support - and I'm glad you found the forum discussions - where others can support, comfort and listen

covid Is complicating our world and I hope that you are able to visit as much as you can to support your spouse 

please write and let us know how we can support you.  News of this kind is overwhelming and we offer encouragement and understanding.. so many of us have had to walk similar paths 

sending you a thought across the miles
let us know how you are doing , keep reaching out  - you aren't alone 
sincerely
NatR 💕 
 
Réponse de Mark99
23 nov. 2020, 15 h 54

It is heartbreaking and crushing to face this alone or with a fully functional support system. It gnaws at us from the inside. You're not alone we all understand that hurt and the associated anticipatory grief and loss. 


When Donna was diagnosed with stage IV cancer we knew there was no happy ending. I began to grieve. That was three years prior to her death. And after her death my grief remains.


Yet, I've learned that the wound of grief allows light to enter us. It gives us knowledge, understanding, and memories that enlighten us. I charged at my grief to learn from it to understand it and embrace it.


It can feel like grief is a bitter pitcher of lemonade. Memories can be that sugar in that lemonade of grief. We're here with you to listen, support, and share. We got you.

Mark 

 
Réponse de Nouce
24 nov. 2020, 13 h 30

Dear Jaytay,

Anyone who is "coping well" these days is probably being dishonest. I find in this time that old griefs intermingle with new ones. A dear friend, my first piano teacher, died yesterday of covid.

I remember the loved ones whose suffering brough me to CVH.

Do keep breathing. And, when you can, notice a bird, or a tree, or a cloud. Stop and seek to rest a bit. May your days be touched with bits of light.
 
Know that I am holding you in the light.

 Nouce
 
Réponse de Shareen
04 déc. 2020, 19 h 48

Hello. I just joined this web site. I'm not sure if this is where I type. I'm 52, living in the GTA (Toronto area) and I've been looking after my father for around 4 years. I'm his caregiver. He has advanced Parkinson's and dementia. He's 89. I live with him in his house. I'm not working. I just look after him. I just feel he's declined a lot in the past year. I  told my LIHN manager (home health care manager) my concerns. She's been very helpful. My dad's family doctor deemed my father palliative this week. He doesn't have any terminal illness. But he does seem very unfocused and out of it. I really feel like he won't live very much longer. But maybe I'm overreacting. I have no family in Canada and the family friends are far away. I try to write to them and do video chat sometimes. But it helps only a bit. I feel very burned out. My mother passed away four years ago and I took over from her in caring for my dad. My dad doesn't communicate hardly at all. What he says is typically nonsensical and delusional. I feel stressed out with this caregiving life. Do you know if there are any Zoom meetings at this site where I could video chat with other people in similar situations? LIke some kind of "palliative cafe" for caregivers? Thanks. 
 
Réponse de Jaytay
04 déc. 2020, 20 h 37

I don't know of any...but I would like to know too. Feel so alone
 
Réponse de Shareen
04 déc. 2020, 20 h 58

Ok thanks Jaytay. Yes, if yo'ure a caregiver, it's a knd of isolating life that is for sure. 
 
05 déc. 2020, 2 h 14

Welcome Shareen, I am glad you found us and were able to post. I was just looking on our page for programs and services and found the Ontario Caregiver Association Have you heard about it? Jaytay you might want to go to that page and see what is available in your part of the country. 

The Helpline number for the Ontario Caregiver Association is 1-833-416-2273 and it looks like they might have a 'zoom' like caregiver support group. 

A few years ago Oldbat started the thread The Long Haul.  I know it's not like talking to someone - but maybe you Shareen and Jaytay could find some comfort in hearing the 'conversation' those members were having. You could post on it as well should you want to.

It is lonely to be a caregiver - others may not understand that it means being a caregiver, cook, cleaner, emotional support for the person but also for other family or friends who call on you for information. And often it's 24/7. It can mean that the role you have had like daughter/wife gets put to the side. And it's tiring - even with supports coming in - you are the bottom line.

If you are able to rest - what do you find helps? Music, walking, TV, reading?

Warm virtual hugs,
Katherine

 
Réponse de Shareen
28 déc. 2020, 17 h 47

Hi Katherine,

Thank you for your reply. I can hardly read this small font in the reply box. So I'l keep this short. I'm sorry I didn't reply sooner. My father passed away on December 9. So I don't know if I didn't get a notification that you had left a message or I just wasn't organized to look or remember. It's been a bit of a blur the past few weeks. 
Thank you for the Ontario Caregiver information. Yes I often participated in their online support group. It was very helpful. I will check out the thread for "Long Haul". You understand well what it's like to be a caregiver. Thank you for your understanding and sympathy. Now my dad is gone and so I have more free time so I try to go for walks. 

I'd like to join an online grief support group. There is probably one on this site. I'm going to try to find it. Thank you for your helpful and supportive comments!

Shareen
 
31 déc. 2020, 2 h 32

Hi Shareen, 
Thanks for letting us know about your dad. I am sure the last weeks have been a blur - and I imagine with more time on your hands you will have time to reflect as well on what has happened over the past years. I hope your walks are peaceful and healing. 

I know your area has had more covid restrictions over the past days.  Are there people you have 'bubbled with' - what we say here in central Canada:) Will you be able to continue with the Ontario Caregivers for support? This forum is the online chat with CVH. 


I wish you rest and peace Shareen over the next weeks.

Glad to hear from you anytime.
Katherine


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