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Lost My Beautiful Daughter 
Créé par alhutch1
01 avr. 2020, 15 h 21

My beautiful 15 year old Daughter passed away December 30th 2019. She had DKA and died from sepsis. Causing her to have a Cerebral edema and cardiac arrest. She had Type 1 diabetes but we did not know. I have type one diabetes but we missed all the signs and some symptoms were not present.
The school called in Mid December and said she was falling asleep in class and her volleyball and basketball coaches had said she seemed weak. My wife took her to the doctor for blood work and discussed. She specifically asked to be tested for diabetes. The doctor called us on the 23 and told us everything looked good. Unknown to us he did not test her glucose. We were relieved and celebrated Christmas. On the 27th her body temp dropped and she was cold to touch she had difficulty breathing,. We took her to emergency and waited 3 hours for the doctor. During this time she slept and her body temp and breathing returned to normal. The doctor looked at her and sent her home saying she had a virus.
My oldest daughter then became sick with the flu. Both slept for two days as we thought they had the flu we thought it would run its course. My oldest daughter got up Sunday afternoon and felt better. Tianna remained on the couch. She was talking, but was still sick. My wife was going to take her back to the Doctor on Monday the 30th but she died on our couch overnight. My wife slept with her and yelled Allan she stopped breathing. Who were we to think we had one more day.

The paramedics resuscitated her and the PICU nurses and doctors tried to keep her alive until 2PM: that awful Monday but she was brain dead.
Hardest part is I have a glucose kit and should have tested her a month before, but she wouldn’t let me poke her finger to draw blood for a glucose test. All she needed was insulin. My wife and I feel so stupid and feel we let her down. Your supposed to have your kids back. Our guilt is overwhelming. She should be here with us. Couple of dumb doctors and parents in denial of her symptoms later she died. Such a waste. Thought I was living the dream and would see the pot of gold and the end of the rainbow.

My life is forever changed. I cry everyday. The first spring I can remember 

 
01 avr. 2020, 19 h 08

Dear Alhutch1
I have been reading and rereading your words. The words, along with the black background, paint a picture of a loving family torn apart with grief and feelings of guilt.  I am so very sorry.  Each day will be a stark reminder that Tianna is not there.

Do you, your wife and daughter have resources in your community that you have found helpful? People to talk with, sit with, be with?

I found these words on the home page of The Compassionate Friends:

"You are not alone
When your child has died, suddenlty it seems like all meaning has been drained from your life.

When you wake in the morning, it's difficult to get out of bed, much less live a 'normal' life. 


All that was right with the world now seems wrong and you're wondering whem, or if, you'll ever feel better:

We've been there ourselves and understand some of the pain you are feeling right now. We are truly glad that you have found us but profoundly saddened by the reason. We know that you are trying to find your way in a bewildering experience for which no one can truly be prepared." 
 


NYour life has indeed been forever changed with the passing of Tianna. Thank you for giving words to what happened and how you are feeling - that can be very hard to do. 

Warmly
Katherine

 
Réponse de alhutch1
01 avr. 2020, 19 h 19

Hi Katherine,


We had attended Compasionate Friends and had some group couselling setup for my daughter Sierra, but this has all been cancelled due to the COVID19.  We have each other and our extended family for now.  The past 3 months have been almost unbearable but we are trying to find a way back.  I am going back to work in about two weeks, but now everyone in the office has been ordered to work from home.  Thought this might help me get back to normal but looks like things will be much the same.  

We are trying but seems the odds are stacked against us,  

We will find away back.  We miss Tianna so much.  I cry everyday.  She should be with us.

Thanks for you reply
 
02 avr. 2020, 21 h 25

I wondered if you had seen or would be interested in a site set up by Canadian Virtual Hospice called mygrief.ca  You of course may already have seen it. 

Thinking of you as you find your way..... 
Katherine
 
Réponse de vmcdonald
03 avr. 2020, 16 h 46

Dear Allan (or Alhutch1)


I’m so terribly sorry for your loss! It’s so hard to grieve for Tianna and be consumed by all the “what-ifs” at the same time. I lost my own daughter to cancer, when she was nine, and I spent a lot of time feeling very guilty about missing signs of her illness and for perhaps not protecting her enough from infection. I too, was wracked with guilt and found all sorts of ways to blame myself. These thoughts still plague me from time to time, usually in the middle of the night. But I now try harder to remember what she added to my life and to the lives of her sisters. We recently “celebrated” her would-have-been thirtieth birthday. I can’t imagine how so much time has passed without her! But we did celebrate. We shared photos of her with all of our family and friends and we each honoured her by doing an activity that she would have enjoyed. For me, that was making a drawing because she was a very talented artist. I know that you are still deep in the most terrible time of your life and the idea of celebration might seem impossible (it did for me, for a long time). But I hope that one day, the times of feeling guilty will be eased by memories of what Tianna gave to you and your family.


 


Sincerely,


Val

 
Réponse de alhutch1
03 avr. 2020, 23 h 52

Guilt is constant and such a useless emtion.  We just needed to stop for a second from our busy lives.  We should have poked her and got a blood sugar months before.  I have Type 1 diabetes and have the glucose kit.  We took her to the doctor and thought he did the test.  He called on the 23rd and said her blood work looks good.  We were on our way out the door for Christmas. My wife never asked what the glucose was.  Doctor never did a glucose but said blood work was good.  We let our guard down and were relieved.  She died on the 30th.  It will be some time before we let go of the quilt. 


Thanks for reaching out.  So sorry you and I are part of this club.
 
Réponse de vmcdonald
04 avr. 2020, 0 h 00

Guilt can be constant and it certainly is distracting. My daughter had leukemia and I missed all the signs--fatigue, spiking temperature and then rash-like spots that were the sign of low platelets. However, as in your situation, a doctor checked her out, said she had a virus, and sent us home without doing a blood test. Two days later, our family doctor sent us to hospital where routine blood work found leukemia that was so advanced she needed dialysis once chemo started the next day.  Yes, I understand that it will take time to let go of the guilt.  It's sadly normal for members of our club, which is not a happy one. However, I have met some very understanding people who became life-long friends. They also "get" the guilt.

best wishes,
Val
 
Réponse de Kim G
08 avr. 2020, 17 h 13

Allan, I am so sorry to hear about your daughter Tianna as well as your daughter, Val.  My daughter Karalee passed away at age 23 from cancer.  We went through the 'what ifs' and the 'why didin't we' for a long time after she passed and although it has been 10 years those feelings never truly go away but they do fade.  I remember buying a book from the Compassionate Friends on grief and losing a child even before Karalee passed because I thought maybe it would help me be prepared.  I read stories from parents who were still grieving after 7 years and I remember thinking "I am stronger than that and I will be okay".  How foolish I was to think there would be a timeframe on grief.  It dosent mean you are weak to grieve it means you are human and have loved very deeply.  

I find myself looking at pictures that were taken before Karalee's illness and thinking that was when we were happy.  That was when we thought we had nothing to worry about we had such a bright future with our 3 children.  How our lives have changed.  Our other 2 children are doing well but they both went through a depression.  It was hard for us to help with and notice the signs as we were struggling with grief ourself but somehow as a family we all came together in our grief.  We seemed to all find strength at different times and help eachother out.  If I was having a bad day my husband would seem to have a strong day and help me through it or vise a versa.  

I have a friend who's only child passed away befor Karalee did and after Karalees service I asked her how she managed and her response to me was "it never gets better but it does get easier" and you may not believe it now as Tianna's death is so recent but you will smile again and it will be okay to smile. 

Kim
 
Réponse de alhutch1
08 avr. 2020, 17 h 28

Hi Kim,

Thanks for your kind words.
Times are tough right now.  I'm going back to work next Tuesday, but because of the virus everyone is working from home.  I thought it would be good to get back to the office and interact as we have been off work since Tianna passed in December.  Seems the odds are stacked against us.

I always used to think how much longer will I have to live but now it's how long before I die.  I hope I can get passed that feeling.  I have another daughter she gives me hope.  My wife is crushed and not sure if she will ever be the same.  Our new normal seems unbearable, but to be human is to grieve.  Just thought Tianna would be with us.  I know she is but not inthis realm.

Take care

Allan
 
22 nov. 2020, 22 h 21

Hello Allan,
You and your family came to my mind this morning. I know it's coming up to a year in December since your dear Tianna died.  I am sure the other 'firsts' over the past year have been hard. Just wanted to let you know that I was thinking of you and holding you and your family in my heart.
Katherine


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