My hustband has been in hospice 10 weeks today. He was diganosed with Pancreatic neuroendocrine tumors in July 2015 - had a whipple in Jan 2016 spread to his liver - had an embolization of the tumours in Dec 2018 where a liver abscess resulted and has never left. Ihad him at home until he fell and hit is head and then I knew we had to get him into hospice as I could not cope any longer with this care.
I knew the hospice from my dad's passing last July 2018 so was well known for me and they continue to amaze me with their care. We cannot seem to get control of the terminal restlessness and agitation that has been going on for so long - he has been on a pain pump with hydromophone since Dec 2018, using versa for short fix and nosanam evry 4 hours. Nothing seems to help he is so weak but thinks he is still working fixing things - last night was the worst with is angry outbursts and acting like he was going to hit me. The nurse and PSW as always were so great - I finally left as there was no hope in sight.
How long can this go on for? - he is so boney and thin - I just wanted him to be calm and peaceful in his final journey. So sad he has to go through this at 64 years of age or any age is just awful.